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World AIDS Museum & Educational Center April 2014 Newsletter

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The Board of Directors of the World AIDS Museum and Educational Center is proud to announce that we, along with our many committed volunteers, are on schedule with the planned opening. We have taken the challenge presented by our difficulties with the HIV / AIDS epidemic and used it to create something that is inspiring and educational. We have accomplished a lot: raising funds, getting the word out, acquiring the space, creating exhibits, and completing a core education package. Opening Day will be 15 May 2014. Initially we will operate on Tuesday, Thursday and Saturday and will offer guided tours and the ability to tell your story on film.

Guided Tours:  
We offer docent-guided tours of the museum which will walk you through the story of HIV throughout the world via pictures, film and written material. In addition, the AIDS Tapestry will present filmed stories from all parts of the world of those affected by HIV. Tours can accommodate groups of up to fifteen people and we suggest that you allow at least one hour to see the exhibit. We promise that you will walk away informed and even inspired.

Call Ed at 954-390-0550 to schedule a group visit.

 

Tell Your Story on Film: 
Mauricio Gerson, Board Member, director of Media and Emmy award-winning film professional is overseeing the creation of the AIDS Tapestry. If you have been personally affected by HIV, please take the time to tell your story; it is a wonderful way to turn your experience into a helpful and supportive example for others.  Call Mauricio at 305-498-5341 to schedule a filmed interview. Please click the link below to see a sample story from a local resident:
Guided Tours:  
We offer docent-guided tours of the museum which will walk you through the story of HIV throughout the world via pictures, film and written material. In addition, the AIDS Tapestry will present filmed stories from all parts of the world of those affected by HIV. Tours can accommodate groups of up to fifteen people and we suggest that you allow at least one hour to see the exhibit. We promise that you will walk away informed and even inspired.

Call Ed at 954-390-0550 to schedule a group visit.

Tell Your Story on Film: 
Mauricio Gerson, Board Member, director of Media and Emmy award-winning film professional is overseeing the creation of the AIDS Tapestry. If you have been personally affected by HIV, please take the time to tell your story; it is a wonderful way to turn your experience into a helpful and supportive example for others.  Call Mauricio at 305-498-5341 to schedule a filmed interview. Please click the link below to see a sample story from a local resident:
Ed Sparan:Up Close and Personal
Ed Sparan:Up Close and Personal

International News:

Russia is home to the world’s fastest-growing HIV epidemic. Driven by injection drug use, it is now becoming generalized. If you use injection drugs in Russia, you likely have HIV, hepatitis C, and more often than not, tuberculosis. Although the Russian constitution grants the right to free access to health services in government facilities, it does not provide effective care to those who have these multiple infections. And it bans opioid substitution therapy-the most effective opiate addiction treatment.

In Russia, the Fight Against HIV Goes Online
In Russia, the Fight Against HIV Goes Online

 

In many ways, the story of Max, is typical of the hundreds of thousands of Russians who use drugs. As an intravenous drug user, he contracted HIV and hepatitis C. But when Max was denied testing and treatment for his hepatitis C, he did something no Russian who uses drugs had done before-Max turned to the justice system. Faced with the daunting task of taking on his region’s health system in court, Max used the Internet for help. He contacted the Canadian HIV / AIDS Legal Network. Through online sessions with a lawyer who was more than 3,000 miles away, Max crafted his legal arguments and strategy. Representing himself, Max sued the regional hospital in Tver that denied him testing, and won his case on appeal. The court ordered testing and treatment for him. Max’s victory inspired him to help others confront the injustices they experience in health services. He co-founded a project at the Andrey Rylkov Foundation in which street outreach workers provide legal consultations for people who use drugs alongside offerings of clean needles and food. In his outreach work, Max relies on the Russian language website Hand-Help.ru – a unique online resource that offers advice about ever-changing Russian drug laws to drug users, their friends, and their families. The site wants to correct a widespread lack of understanding of drug laws common not only among people who use drugs and the general population, but also law enforcement officials, prosecutors, and judges. In a vast country like Russia, where accessing a lawyer is not always practical or possible, Hand-help is only a click away, offering accurate and up-to-date advice and information. Armed with an innovative resource like Hand-help, and a conviction that Russians who use drugs should be treated as people worthy of respect, Max wants others to recognize their power. “The most important thing,” Max says, “is strength in your own life-to fight for help, to stand up for something.”

CALL FOR ACTION

With the opening of the Museum we will close the opportunity to become a “Founding Member” of the World AIDS Museum. You can be a part of this exciting endeavor by joining as a Founding Member and making a personal commitment to ensure that the Museum’s mission becomes a reality. Founding Members’ names will be permanently and prominently recognized at the Museum on the ‘Founding Members’ wall, as well as on the website. To become a Founding Member you may choose to contribute $1200 at one time or in incremental payments. Memberships may also be made in memory of someone important to you. To become a Founding Member before this opportunity ends, contact Hugh Beswick at: 412 523 5245  hughbeswick@comcast.net

Thanks to our Hard Working Board of Directors

Hugh G Beswick, Chair and CEO; Steven C. Stagon, Founder and President; Thomas Sheaffer, Secretary; Andrew Wilkinson, Treasurer; Mauricio Gerson, Media and Film Director; David Friedland, Exhibits; Edward Sparan, Arts and Events; Dr. Rosalind Osgood, Education; Dr. Elie Schochet, Medicine; John Ramos, Honorary Board; Scott Noxon, Honorary Board

Click Here to Donate

or visit:

www.WorldAIDSMuseum.org

World AIDS Museum
1201 NE 26th St. Suite 111
Wilton Manors, Florida 33305
954-390-0550

World AIDS Museum & Educational Center March 2014 Newsletter

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Message from the CEOHugh.jpgWhen you pass the site of the World AIDS Museum and Educational Center you will undoubtedly see our beautiful new sign. As I look at it, I think of our mission: to eradicate the HIV stigma by documenting the history of HIV/AIDS, educating people about the disease, remembering those who have suffered from it, enlightening the world to this continuing tragedy and empowering the survivors. The first major implementation of the mission will occur with our opening late this spring. It will be a limited opening and will include two dramatic installations:1. The Chronology of AIDS which tells the story of HIV throughout the world in a timeline format of pictures, words and guided narrative. The following link provides a brief video of the Chronology:

 Click Here to See Video

 2. The Virtual Tapestry which captures stories of those infected and affected by the disease on video and portrays the human experience with HIV in all its diversity.

Phase ll is scheduled for late fall and will include a more comprehensive museum experience as well as a grand opening event.  We are deeply grateful to the Board of Directors and to our many donors for making the World AIDS Museum and Educational Center possible. YOU have provided us with encouragement and support. While we are close to the realization of our plans we ask for continued support from all who believe in and value of what we are doing. You can donate by Clicking Here and following the easy steps. Even simpler, you may call me at (412) 523-5245 or write to me at hughbeswick@comcast.net and one of our volunteers will quickly follow up.

Finally, we will be sending each of you this newsletter on a monthly basis as we move forward. Thanks again for your wonderful support!

Sincerely,

Hugh G. Beswick, CEO of World AIDS Museum and Educational Center


HUGE ADVANCE IN HIV PREVENTION

Shot.jpgExciting new research suggests that a single injection administered every one to three months may someday give an alternative to the daily pills people take now to cut their risk of getting HIV. The drug has been tested for prevention in monkeys, and it completely protected them from infection in two studies. “This is the most exciting innovation in the field of HIV prevention,” said Dr. Robert Grant, an AIDS expert at UCSF.

The long-acting drug is “extremely safe, well tolerated.” Another trial is testing the medication in patients as a treatment, not just for prevention. Public health officials stress that until a vaccine is developed condoms are the best way to prevent infection with the AIDS virus.

POZITIVE ATTITUDES

Pozitive AttitudesThe educational support group of the World AIDS Museum hosted a number of guest speakers recently to discuss important issues relating to HIV:

March 19 – Dr. Patrick Kenny of Midland Medical, provided details about new advancements in treating Hepatitis C (HCV). Many people with HIV are co-infected with Hepatitis C. New medications treat or cure up to 90% of patients.

March 12 – Peter Jackson, fitness / nutrition coach and owner of Push Fitness, presented a program, “PoZitively Healthy – 10 Fitness & Nutrition Tips to Achieve Your Best Health,” while living with HIV.

February 12 – Sean Strub, founder of POZ magazine and producer of the play The Night Larry Kramer Kissed Me, gave a presentation along with a book signing of his new memoir entitled “BODY COUNTS.” This event was sponsored by the Stonewall Museum with the support of the World AIDS Museum and our Pozitive Attitudes group.

POZITIVE ATTITUDES meets at the Pride Center at Equality Park every Wednesday at 7 PM. Visit:

www.PozitiveAttitudes.com or www.WorldAIDSmuseum.org

CALL FOR ACTION

With the Museum’s opening we will close the opportunity to become a Founding Member. You can be a part of this exciting endeavor by making a personal commitment to ensure that the Museum’s mission becomes a reality. Founding Members’ names will be permanently and prominently recognized on the ‘Founding Members’ wall, as well as on the website. To become a Founding Member you may choose to contribute $1200 at one time or in incremental payments. Memberships may also be made in memory of someone important to you. To become a Founding Member before this opportunity ends contact Hugh Beswick by phone at 412 523 5245 or by email at hughbeswick@comcast.net

Thanks to our Hard Working Board of Directors

Hugh G Beswick, Chair and CEO; Steven C. Stagon, Founder and President; Thomas Sheaffer, Secretary; Andrew Wilkinson, Treasurer; Mauricio Gerson, Media and Film Director; David Friedland, Exhibits; Edward Sparan, Arts and Events; Dr. Rosalind Osgood, Education; Dr. Elie Schochet, Medicine; John Ramos, Honorary Board; Scott Noxon; Honorary Board

Click Here to Donate

or visit:

www.WorldAIDSMuseum.org

 Marquis

World AIDS Museum
1201 NE 26th St. Suite 111
Wilton Manors, Florida 33305
954-390-0550

Phase-1-Opening


 

 

2014 01 24 Volunteer


 

The World AIDS Museum volunteers at the SmartRide November 17, 2013

The smart ride raised over $1 million for nonprofit HIV and AIDS organizations.The volunteers called themselves “WAM” and were lead by Hugh Bestwick and Jeff banning.

Thank you Smart Ride volunteers

2013 11 17 SmartRide 2

Hugh Beswick, Jeff Banning, Ismael Santiago, Patrick Joyce, Scott Blumstein, Mark Harness, Miguel Figuroa, Derek Harrison, Richard Biviano, David King

2013 11 17 SmartRide 1


 

Magic Johnson

FILE - Group That Includes Magic Johnson Buys Dodgers

On the 21st anniversary of his announcement that he is HIV-positive, Earvin ¿Magic¿ Johnson helped dedicate the space for the World AIDS Museum and Educational Center at Wilton Station on Thursday. (Kevork Djansezian, Getty Images / March 27, 2012)

 

By Ariel Barkhurst, Sun Sentinel

6:06 p.m. EST, November 7, 2013

WILTON MANORS —

On the 21st anniversary of his announcement that he is HIV-positive, Earvin “Magic” Johnson helped dedicate the space for the World AIDS Museum and Educational Center at Wilton Station on Thursday.

About 100 people, some museum donors and some from HIV and AIDs organizations, gathered to hear the basketball star speak.

“When I first started treatment years ago, it was 15 pills three times a day,” Johnson said. “They said it was because I’m a big guy. So my height worked against me. But now, it’s pills once a day.”

The world has also begun to combat the stigma of HIV and AIDS, and the museum is proof of that, Johnson said.

The museum will be the first in the world dedicated solely to “telling the story of HIV and AIDS,” said President Steven Sagon.

“I’m so glad we got this museum started,” Johnson said. “We’ve all got to work together and that’s the key.”


 

The World AIDS Museum at 1201 Northeast 26th St., Suite 111, should open in early 2014, Stagon said. The board hopes the museum will grow beyond the 3,000-square-foot space in Wilton Manors.

A year ago, no one had heard of the museum, said museum board chairman Hugh Beswick. Now, the museum has 34 individual donors who gave at least $1,200 and the got a $94,000 grant from the Community Foundation of Broward, from the John C. Graves Charitable Fund.

“It’s amazing how it’s happening for us, now,” Beswick said.

Broward County is just the place for this museum to thrive, Stagon said.

“This is the epicenter for the AIDS epidemic in America right now,” he said. “And Broward County gets 12 million tourists a year. There aren’t a lot of museums here, period. So in a lot of ways, there’s a void here we are filling.”

The museum will feature exhibits such as an “AIDS chronology,” Beswick said, a multimedia timeline that walks visitors through the history of the disease.

There will also be a room set aside where people can film their own personal stories, he said. The stories will go online into a “virtual quilt” of films telling such stories.

On Thursday, the only museum exhibit on display was a large red ribbon sculpture made out the artist’s empty HIV medication bottles.

That’s 417 bottles worth a total of $85,000, said creator Ed Sparan of Fort Lauderdale.

“See, that’s 10 years’ worth,” Sparan said, gesturing to the three-foot-tall amalgam of bottles held together by glue, liquid rubber and paint. “Magic is 21 years. His would be twice the size.”

abarkhurst@tribune.com or 954-356-4451

Copyright © 2013, South Florida Sun-Sentinel

 

2013 12 1 Word AIDS Day

FOR IMMEDIATE RELEASE

(Fort Lauderdale, FL) The Community Foundation of Broward, has approved a $94,000 capacity building grant to the World AIDS Museum and Educational Center.  The Community Foundation’s grant, from the John C. Graves Charitable Fund, will enable the Museum to establish a permanent site in Broward County and enhance sustainability efforts to grow the Museum’s future.

“This is a phenomenal opportunity to move the World AIDS Museum and Educational Center forward,” said Steve Stagon, the Museum’s CEO and President of the Board.  “Our initial fundraising efforts have been highly successful and this generous contribution ensures that the museum will open in the next few months.  This first phase is part of a long range plan to develop a first class museum.”  Tasked with telling the story of HIV/AIDS throughout the world, the Museum has chosen the greater Fort Lauderdale, Florida area as its home.

Speaking on behalf of fellow John C. Graves Fund advisors Richard Salomon and Carl Trough, Dean Trantalis stated, “it is an honor to be able to participate in the effort to recognize and commemorate the efforts of the HIV/AIDS community and its history.”  He went on to say that “it is a bold undertaking, but the challenge is well-placed in the hands of the Museum’s board.”

Supporters of this effort are encouraged to reach out with individual contributions to leverage the impact of this generous donation.  Contributions are tax deductible and will be used to expand the Museum’s outreach and educational programming.  To make a contribution, please visit www.worldaidsmuseum.org/donate.

 

About the World AIDS Museum and Educational Center

Founded in September of 2011, the World AIDS Museum was an idea that grew out of the Fort Lauderdale based group Pozitive Attitudes, a topic driven support group for HIV positive individuals.  The Museum’s mission is to increase awareness of the HIV/AIDS epidemic by documenting the history of HIV/AIDS, remembering the people who suffered from the disease, educating people about HIV/AIDS, and enlightening the world to this continuing tragedy and empowering the survivors.   The museum will be opening in the coming months in an initial location and plans to grow into a larger space permanently housing many world class galleries.

For more information about the World AIDS Museum and Educational Center, call 954.815.2550 or email contact@worldaidsmuseum.org.

About the Community Foundation of Broward

Founded in 1984, the Community Foundation of Broward’s mission is to provide leadership on community solutions, and foster philanthropy that connects people who care with causes that matter. A public nonprofit organization with more than 450 charitable and agency endowments Funds representing $150 million, it has distributed $60 million to support community solutions over the past 29 years. For more information about the Community Foundation of Broward, visit cfbroward.org or call 954.761.9503.

 

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Contact: Steve Stagon

(954) 815-2550

steve.stagon@worldaidsmuseum.org